Formula

It's amazing how Dominic's personality changes when he does not get the MCT formula that he needs. I ordered last week but someone messed up at Vitaflo and so I called frantic yesterday that the formula is still not here. So last night was his last formula bottle. For the night feeds I breast fed only, then breastfed this morning again. By 9:30am he just wanted to sleep and has been so fussy. In 8 hours not having the MCT formula = a fussy over tired baby. We received the overnight shipment today and I gave him a bottle, he's back to his normal happy self. I'm shocked at how the lack of Medium Chain Fats affect him. It makes sense though because he cannot burn the Long Chain Fats for energy, with out the Medium fat he can burn he had no energy.
I hope to not run out of the formula or MCT oil when we start that. I'm gonna have to figure a way to have a good stock pile of it.

Things are looking up??

We had Domino's metabolic genetics appointment today. He's doing very well, growing like a weed. The last lab results on fat were very good, in the normal range so that means his diet is working. He had slightly elevated CK levels (muscle/heart damage levels) that I was worried about but the Doctor said they were nothing to worry about - woo hoo! He will get another Eco cardiogram at 12 months of age to be sure his heart is not enlarging.
We also got a Glucose meter to check his blood sugar when he doesn't eat very well or starts to get sick. We have to take him in if it's under 60 but we are not to rely solely on it, we are supposed to really rely on the way he is acting when he's not feeling well. So irritability, lethargy like when he was a newborn and of coarse if he's not keeping anything down we'd go in. We got through his first cold and he did great, kept on eating!
We found out today though while he is still on formula & breast milk until he's a little over a year he is only allowed 2 grams of fat from food, this is such a small amount! One baby food jar of chicken & rice dinner has 3 grams of fat! So we will mainly feed him only fruits, veggies & baby cereal until he's over 1, anything we give him for table food at first will have to be fat free. We didn't expect it to be that low of a number. Eventually he will be able to have more fat. So that was the only downfall to the visit, overall he is doing much better than we thought he would.

Aidan had his DNA testing done so that we can be sure that he is not VLCAD, it will be a major crisis if he is, trying to get him to eat fruits & veggies and no fat would be impossible! We highly doubt that he would have it, if he did it would only affect him mildly obviously, he's always been a healthy child.

He Poops!

Finally, he is pooping regularly. This has been so difficult for us. Dominic has had constipation and pooping problems since a few days after he first started the Lipistart special formula he's been on starting at 1 week old. Before the formula he was a regular pooper, 4-5 times a day. You'd think we wouldn't complain about not having to change poopy diapers but it's really hard to watch your baby struggle trying to get one out. Since we could not change formulas, we've had to force it or it doesn't happen, we forced it by by suppositories, kyro syrup and even prescription laxative almost daily. Since he started solids this week I've gotten a poo every day without doing anything!! Woohoo! Big milestone for us!